Most people are diagnosed with Multiple Sclerosis during their most productive working period - between the ages of 20-50. This section aims to explain what MS may mean for your professional life.
Our guide below offers some guidelines on dealing with MS in the workplace and advice for employers.
Remember
Your work experience, value, and skillsets are unchanged, but there are considerations to take into account.
Every person experiences different symptoms at different times. For some, this can present a challenge at work, while for others, very little change is needed.
Employee Guide
Every experience with MS is unique. Take time to consider how and when to discuss your MS diagnosis with your employer.
01
Don’t rush into deciding whether to give up work or inform your employer immediately. Take the time to discuss in detail your options with your family, trusted colleague, or healthcare professional.
If you work in certain sectors, such as the armed services or a role where your symptoms may affect your health and safety, your colleagues, or the public, then informing them will most likely be mandatory.
02
If disclosure is not mandatory, you may need their support further down the line (time off for medical appointments or treatments, for example) then it may help if you decide to tell them.
It may still prove worth telling them so they’re aware and can offer support if things change and symptoms increase, impacting your performance at work.
03
You may be worried about how your employer will react when you tell them about your MS diagnosis. Research has found that people with MS who tell their employer are more likely to remain employed and stay in work long term than those who don’t.
Employers Guide
My employee told me they have Multiple Sclerosis (MS). What next?
01
First, take some time to familiarise yourself with MS and hear your employee’s journey.
People with MS find it difficult to share news of their diagnosis with their employer, yet they have trusted you with this knowledge. You’re in a good place!
02
Second, every person with MS has different needs. The regularity and severity of symptoms will vary per person; try not to assume what the employee needs.
Many do not require any additional support in the workplace. For those that do, their requirements will be unique to them.
03
For many, having received the life-changing news that they have developed MS, a supportive employer can make a massive difference. Ideally, their condition will allow them to remain a productive member of staff at work. All that’s required from you is patience, understanding, and a willingness to support them with ‘reasonable adjustments.’
04
Most people with MS are under no legal obligation to share their condition with their employer. The decision to do so may be a difficult one to make. Some fear they will be perceived as less capable, or that it might affect their career development, or perhaps that it may even result in termination.
05
It’s taken a lot of courage for your employee to tell you about their MS, please offer as much reassurance and support as practically possible.
Explore additional resources to learn more about Multiple Sclerosis (MS) and its impact on people in the workplace.